One Day at a time.
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We live in a small village in Kenya. My husband of 30 years is an accountant by profession and has his own practice. We have 4 children two who have finished college education - one of whom is doing her masters. Our eldest son got married last year. The third born is in his third year of college - he is pursuing 'Actuarial Science'. Our fourth child a girl is in third form of high school.
Our parents are very strong Catholics - their parents saw the advent of the church in our parish. The church here is 101 years old. We had occasion to stay with my mother who had Alzheimer and we lived with her for 5 years before my brother volunteered to live with her. All of us took part in her care - she is still alive. My mother in law is now widowed - she is 90 years old but prays the Rosary every day, attends mass daily when it is not raining as she cannot walk in the slippery mud that is our roads here. However, the story is about my husband who was diagnosed with Multiple Systems Atrophy -a very rare condition.
It presents itself with Parkinson properties and is a very challenging condition. We traveled to India to seek medical attention - apparently no one knows anything about it and basically he was only treated for the many symptoms. The disease is degenerative. However, Pius is such a trooper, he still goes to his practice, he is an active member of the small christian community (St. Marks) and one would have to see him to believe. He suffers from balance and walks about like a "drunkard" - this are insensitive words used by people when we go to church and they talk behind his back. We usually walk for a bout 6 Kms for our way of the cross on Good Friday. Pius walks while being held - and this year we started at 9.00 am - reaching the Church at 3.00 p.m. He never complains although he suffers from constipation, hypo-tension and incontinence.
Yesterday, he needed to pay school fees for our son and when he went to the bank - the signature could not be verified. He had therefore to use his Thumb print. He later told me that he was weeping inside as he put the thumbprint instead of his signature. He then saw the positive side to this and told me that he thanks God that there is something to thumbprint for and that he is there to pay school fees for his son and that he is still earning.
I am his principal care giver and when he comes home too tired to even chat - my heart is pierced and sometimes I admit I weep - knowing how robust he was. Pius leads us in prayer and sometimes I will wake up at night to find him praying the rosary when he cant sleep as insomnia is also part of what he suffers. We thank God for his mercy as we live one day at a time.
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